Scotty is home

We made it home today and couldn't be happier.  Scott is doing ok, not feeling great but still able to get around and crack jokes.  We have watched movies, napped, visited with family, read books with cute little kiddos and were able to share some quiet time just the two of us.  We will be home until our next round of chemo (I think in about 3 weeks).  Basically we will be in the hospital about 1 week a month for the next six to eight months.  We still have so many unanswered questions and so much is up in the air.  We are trying to stay off of google because there is too much information out there and I don't know what can be trusted.  The stuff that seems real is so scientific that it is hard to understand.  We do know that Scott does not have the Philadelphia Chromosome, which I still am confused about that.  Is it better to have it or not?  We will find out this week when we see our doctor.  He did say that it would be better to have it because there is medication that can be taken that betters our chance of remission.  But without it a bone marrow transplant may not be necessary.  Scott has an appetite that comes and goes.  I know that comes with chemotherapy and not feeling well but whatever requests he has we make sure to get it to him.  Scotty does not need blood transfusions yet but doctors have assured us that he will in the future.  We are trying just to relax and take this one day at a time.  It is so hard but we know we can do it.  We appreciate everyones hard work and willingness to help us through this hard time.  More updates later.  Thanks you for praying for us.