news

Scotty has been home now for 2 days and is doing ok.  He gets really tired very easily.  Taking a shower nearly puts him to bed.  We had a doctor appointment today and left disappointed.  They had us come in today to get the nulesta injection (a superduty injection to boost white blood cells) and we were told that it would take 3-5 days for preauthorization from our insurance company so instead they wanted us to do another shot for the next 4 days.  Now you are probably asking the same question as me.  Why didn't they do the preauthorization last week?  Who knows!  Everything else seems to be ok.  We went down to the infusion room to get the alternative injection and that has to be preapproved as well by our insurance.  We will be back at the doctor tomorrow and hopefully the insurance gets worked out.  The doctor prescribed a couple more prescriptions for extra protection.  Another frustrating moment... going to the pharmacy and them explaining that one of the prescriptions can not be filled until october 5th.  Problem is the last pharmacy gave us a ten day supply, not 30.  As if I don't have enough to do now I have to call our insurance and get it straightened out before the ten days are up.  Scotty takes 16 pills a day right now (3 are vitamins) and I am sure the list will continue to grow.  Friday he will go in for another shot of chemo.  The starting Friday through Monday he will add another ten pills a day.  Do the math that adds up to 26 pills a day.  I am so glad to have Daddy home with us.  I love taking care of him and just sitting here with him puts my mind at ease.  We are so grateful to our family and friends who have helped us by bringing meals and helping with the kids.  So many people have reached out to help us and we can not express how much it means to us.  We are stable right now, laying low, watching lots of movies, TV and trying to rest.  Please keep the prayers coming, we need them.